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Du du du du duu

12/15/2014

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Oncologist knocks on the door, 'Du du du du duu'. He always gives a chirpy knock before entering the room. I like that about him. He cuts to the chase 'It's good news'. 

Chemo has been effective and there has been a significant improvement. Lymph nodes have returned to normal and the cell activity which is highlighted on the scan by the radioactive sugar has decreased. I'm not out the woods yet, but I'm reacting well to treatment which means we are onto the next stage, radiotherapy.

Before we leave the Oncologist, he removes my PICC line. I was a little subdued until this point but removing the foot of cable from my body felt wonderful. Very liberating. I can shower without an arm length plastic glove belted at the top of my arm and take Evie to her swim lessons.

I feel odd not being on chemo, don't get me wrong, I feel fantastic but I miss the peace of mind that comes with being pumped with cancer killing poison. I'm eager to get going with radiotherapy. I meet my Radiologist, he sits down with piles of print outs. Turns out they are my files and he has studied them meticulously. Nick describes him as a lovable European Uncle. It's hard not to warm to him. I promptly had 2 CT scans and my radiotherapy mask fitted. Much to Evie's joy I also have markers and stickers on my belly. She keeps pulling up my top to show pretty much anyone. I hope they are as impressed by my belly stickers as she is. Although going by their facial expressions they seem even more horrified than me. O dear.

On another note, my sister has gone home. I'm missing her and so are the girls. I don't have any pictures to post today, so instead I will share a picture Louise sent me this morning. She sent it to me as this gentleman has my exact hair cut! We could be twins. 
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Feeling Radiant

12/9/2014

3 Comments

 
It is hard to feel scared whilst wearing a reindeer onesie. Which is why I am sat here, writing this, with a cup of peppermint tea, dressed as a reindeer. Eccentric you say? Perhaps a little drastic? Maybe so. I will say one thing, it is ever so comfy and I don't feel in the least bit scared. 

Yesterday I had a PET scan to check on progress following 4 months of chemo. My sister accompanied me to the hospital. She is all kinds of beautiful. We giggled our way into the hospital, it almost felt inappropriate to be smiling so much whilst preparing to be injected with radioactive material. We sauntered past the floor to ceiling water feature in the hospital entrance with the hospitals tag line 'we also treat the human spirit'. The clean hallway and sploshing sound of water along with reassuring words almost lull you into a sense of calm. That is until you register, get your arm tag and told to go down to the lower level to 'Nuclear Medicine'. That's right, 'Nuclear Medicine'. Not the most inviting department name. The lift door opens to the lower level and Louise quietens. The floors have scuff marks from shoes, beds, trolleys and there is no useful directory, map or soothing tag line. We enter the warren that is the nuclear energy department. There's no windows, just lots of small dimly lit rooms off a grid of hallways. 

We check in and we take up position in the waiting room. I see Louise scanning the small space. The walls are a tan colour, there's about 8 chairs seated around the edge of the room, all of which are taken by people either watching the muffle of the tv or flicking through crinkly old magazine pages. 
'They really need to change the colour of the walls, something with more of a relaxing tone' says Louise. I agree. 

We move onto the name 'Nuclear Medicine'. We both agree that whilst an accurate description of the department, it is a little terrifying. Louise, being the scientist that she is, comes of with the brilliant suggestion to rename the department to 'Positron Medicine'. This has the benefit of being factually correct whilst also sounding positive. We agree her genius suggestion could be rolled out around all the hospitals in America and are just planning our glorious rollout when I get called in. 

At this point I was injected with radioactive sugar - even cancer can't resist a little sugar. I was then taken to an 'isolated' waiting room to wait for an hour before the scan. I was isolated as I was literally radiating. The hour passes with me, myself and my grumbly stomach. The scan itself was effortless; I was maneuvered back and forth through two rings which do their work silently for 17 mins. For a nuclear warren, this department really does house the best staff. They are chatty, smiley and down to earth. 

I walk back to find Louise is loaded with sweeties from a man who took kindly to her in the waiting room. Sucking our mints we escape the nuclear warren and breath a sigh of relief. We will not get the results from the test until tomorrow (Wednesday) so we decide to deviate a plan to keep my mind off the impending results. 

We opt for a reindeer night. When we were little, our Mum had a bizarre habit of dressing all THREE of us in matching ensembles. Naturally the outfit would be obscene - red snowman jumpers and full on floral dresses. The change happened slowly but suddenly I also feel that urge. I can't explain it but seeing the girls in identical outfits is like watching cat videos on you tube, it's adorable and addictive. Louise started in the summer with cute matching summer dresses and somehow we've ended up with FOUR reindeer onesies. So we all wore our onesies, ate roast chicken and watched a movie. How civilized. 

Which brings me back to now. I'm now pondering whether to get my results dressed as a reindeer. It really is hard to imagine receiving bad results dressed like this?!

 
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3 Comments
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    Hello.

    My name is Sarah. I'm a Mummy to two scrummy girls, wife to one Scottish DIY enthusiast, writer, traveller, animal lover, and cake baker who is also puddle jumping her way through a journey with hodgkin lymphoma.

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